Biodata - Workshop on genomics, health records, database linkage and privacy
On 22 February 2012 the Council held an exploratory workshop which bought together Council Members, staff and invited experts to discuss the ethical issues raised by genomics, health records, database...
View ArticleCall for expressions of interest in new biodata project
Council work theme to examine genomics, health records, database linkage and privacyread more
View ArticleNew Working Party on biodata
The Council has established a new Working Party to examine the ethical issues that arise in connection with genomics, health records, database linkage and privacy.We are delighted to confirm that the...
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Biological and health data - About the Working Party
Read the Working Party's terms of referenceDownload the register of interests for membersMembership of the Working Party Also on the WebAlso on the Web: Featured contentFeature item image: Feature...
View ArticleBiological and health data - Background to the project
The use of new technologies that greatly facilitate the collection, storing and linking of data has become increasingly important to biomedical research and healthcare, as well as to many of the...
View ArticleBiological and health data - Terms of reference
To identify developments in the collection, linking, use and exploitation of human biological and health data arising from advances in knowledge, technology, organisation and governance.To identify,...
View ArticleBiological and health data
Developments that facilitate the collection, linking, use and exploitation of data relating to individual people have become increasingly important to biomedical research, healthcare, and other aspects...
View ArticleBiological and health data - Project updates
5th July 2013Government establishes Genomics England to deliver 100K Genomes projectAlso on the WebAlso on the Web: Featured contentFeature item image: Feature item strap line: Feature text: Feature...
View ArticleCouncil holds fact-finding meeting on ‘big data’
The Council’s Working Party on biological and health data held its first fact-finding meeting on Friday 19 July, marking a shift from the initial scoping phase of the project into the evidence...
View ArticleBiological and health data - Government establishes Genomics England to...
5th July 2013Also on the WebAlso on the Web: Featured contentFeature item image: Feature item strap line: Feature text: Feature item link: read more
View ArticleBiological and health data - Fact-finding meeting on privacy and data control
The Council’s Working Party on biological and health data held its second fact-finding meeting on 12 September 2013. The meeting was focused on privacy and data control issues in research and clinical...
View ArticleBiological and health data - The linking and use of biological and health...
Introduction(Skip to questions)Also on the WebAlso on the Web: read more
View ArticleBiological and health data - Glossary
Back to questionstest: visualisationAlgorithm: a method for calculation or problem-solving in a finite set of steps, which may be automated.Anonymisation: the removal of personally identifying...
View ArticleBiological and health data - Do biomedical data have special significance?
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View ArticleBiological and health data - What are the new privacy issues?
Background(Skip to possible aspects to consider)Also on the WebAlso on the Web: Featured contentFeature item image: Feature item strap line: Feature text: Feature item link: read more
View ArticleBiological and health data - What is the impact of developments in data...
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View ArticleBiological and health data - What are the opportunities for, and the impacts...
Background(Skip to possible aspects to consider)Also on the WebAlso on the Web: Featured contentFeature item image: Feature item strap line: Feature text: Feature item link: read more
View ArticleBiological and health data - What are the opportunities for, and the impacts...
BackgroundAlso on the WebAlso on the Web: Featured contentFeature item image: Feature item strap line: Feature text: Feature item link: read more
View ArticleBiological and health data - What are the opportunities for, and the impacts...
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View ArticleBiological and health data - How to respond
We would prefer it if you could send your response to us electronically. Responses can be sent via email to Tom Finnegan (tfinnegan@nuffieldbioethics.org), with ‘Biological and health data...
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